I am a full time stay at home mom of an absolutely beautiful and amazing 6 year old girl named Emma. She was born with hydrocephalus and later developed Craniosynostosis during her first few months of life. She was also diagnosed with chromosome 6q deletion and Lennox-Gastaut syndrome, an incurable form of epilepsy. She’s been through more in her brief time here than most people will experience in a lifetime. I admire her strength, resilience and fighting spirit. This is her journey, as well as mine.