If I can give any advice about having a baby with any kind of issues it would be to ask questions. Never feel like you’re annoying or being a pest. This is your child and in Emma’s case, she was an infant when all this started and she can’t speak for herself. YOU must be your child’s advocate. YOU must question the who, why, what, where, when and how. Nobody else will fight for your child like you will and nobody else will love your child like you do. This was definitely the hardest lesson learned.
Learned lesson
Emma Bear's Journey 