If I can give any advice about having a baby with any kind of issues it would be to ask questions. Never feel like you’re annoying or being a pest. This is your child and in Emma’s case, she was an infant when all this started and she can’t speak for herself. YOU must be your child’s advocate. YOU must question the who, why, what, where, when and how. Nobody else will fight for your child like you will and nobody else will love your child like you do. This was definitely the hardest lesson learned.
Learned lesson
Published by Lauren Seeger
I'm a mom of four girls, including my daughter Emma, who is nonverbal and has complex medical needs. Through Emma Bear's Journey, I share our family's experiences, the everyday resources that help us, and what I've learned about caring for and advocating for Emma. My hope is to help other families feel more informed, supported, and less alone. View all posts by Lauren Seeger